The Journey of an Advocate: How Zach Bachelor is Raising Awareness about Rare Diseases

Introduction

When it comes to raising awareness about rare diseases and advocating for those affected, Zach Bachelor is a name that often comes up. As a rare disease patient himself, Zach knows all too well the struggles that come with navigating the healthcare system. He has used his experiences to become a vocal advocate and raise awareness about rare diseases. In this article, we’ll take a closer look at Zach’s journey and some of the ways he’s been able to make a difference.

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Zach’s Early Journey

Zach was diagnosed with a rare disease when he was just four years old. Due to the rarity of the disease, it took a long time for him to get an accurate diagnosis. His family eventually took him to the National Institutes of Health (NIH) where they were able to get a better understanding of Zach’s condition. This experience showed Zach the importance of advocacy and sparked a desire to help others facing similar challenges.

Advocating for Change

Since then, Zach has become an active advocate for people with rare diseases. He has worked with organizations like Global Genes and the National Organization for Rare Disorders (NORD) to raise awareness about rare diseases and advocate for policies that benefit patients. One of Zach’s most notable accomplishments came in 2016 when he testified before the Senate Appropriations Committee in support of the 21st Century Cures Act. This legislation included provisions to help streamline the development of new treatments for rare diseases.

The Power of Social Media

In addition to his work with organizations and lawmakers, Zach has also used social media to raise awareness and connect with others in the rare disease community. He runs a popular blog and social media channels where he shares his experiences and insights. He also maintains an active presence on Twitter where he engages with others and keeps up with the latest news and developments in the rare disease space.

Conclusion

Zach Bachelor’s journey as an advocate for rare diseases is an inspiring example of the power of individuals to make a difference. Through his advocacy work, he has helped to raise awareness and improve the lives of people with rare diseases. His story serves as a reminder of the importance of advocacy and the need to continue working towards better outcomes for patients. As the rare disease community continues to grow and evolve, we can all learn from Zach’s example and strive to make a difference in our own ways.

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